Here's a list of Internet Support Groups
American Syringomyelia Alliance Project
The World ACM Association Support Group
Chiari Connection Internationall
Local Support Groups
*******Arizona*********
Arizona Area
AZ Syringo Chiari Support Group Founders Judy Dragiewicz & Shelley Norris
Contacts:
Debbie Juengel
623.561.6906
azsyringochiari@cox.net
*******California*********
Lisa Yates
9411 Ottomon Way
Orangevale CA 95662
916-214-3839
destinyclergyservices@yahoo.com
********Cincinnati************
Greater Cincinnati Area
Ray D'Alonzo
8700 Mason-Montgomery Rd
Mason OH 45040
513-622-1977
dalonzo.rp@pg.com
********Iowa*********
Iowa Area
Sheryl Andre
1714 Douglas Ave
Ames IA 50010
515-233-4292
sandre25@mchsi.com
*******Kansas & Missouri Area*********
Jayne Link
2825 Lower McDowell Creek Rd
Manhattan KS 66502
785-776-5392
fsharp@prodigy.net
Sheila Rainey
23729 Highway 98
Boonville MO 65233
*******Kentucky*******
Jean Kinsey
307 Hodges Lane
Brooks KY 40109
502-955-6417
mjkinsey@alltel.net
*******Maryland********
Nancy Young
1581 Charleston Dr Ct L
Edgewood MD 21040
410-538-4521
*******Michigan*****
Cindy Dellamater
10299 Oak Rd
Otisville MI 48463
810-631-6775
Hogan810@cs.com
******Missouri*******
Paul Bales
4315 Ellenwood
St Louis MO 63116
314-351-3122
PBSLMO@hotmail.com
*******New York******
Oneida County Area
Margaret (Peg) Curtacci
9029 E Boak Rd
Holland Patent NY 13354
315-865-7498
pegcurtacci@excite.com
******Northwest / Portland Area********
Aaron John
Portland
OR 97201
Email: ajfabb-groups@yahoo.com
web site http://smnw.selfip.org
Michele McGraw
Syringomyelia Northwest Support Group
Edmonds, WA
michelelm@verizon.net
(425) 742-0982
*******Ohio**********
Karen McCann
1365 Bellefontaine Ave
Marion OH 43302-7011
740-383-4363
klmpsm@aol.com
Ohio Parents with Children with CM/SM Support Group
Sherri Ketchesin
217 Erie St
So. Amherst OH 44001
440-986-2040
ketch16@yahoo.com
*******Pennsylvania*******
Marilyn Kilbourn
108 Moyallen St
Wilkes Barre PA 18702
570-675-1835
Renee Tobias and Melissa Ruth
The Children's Clinic of Wyomissing
Wyomissing, PA 19610
mruth@chiaripeople
ofpa.com
610-413-3259
********Texas*********
Susie Brasseal
133 Rio Azul
Sequin TX 78155
830-560-1145
sbrasseal@aol.com
or
Texas4ASAP@aol.com
*******Southeast Area******
Pam Holmes
112 James St
Ozark AL 36360
334-445-0760
pamjh@charter.net
*****Tennessee*********
Stephanie White
820 Roy Donegan Rd
Dickson TN 37055
615-740-0202